As usual with stuff like this I write, this is advice to myself. Clearly i don’t have it sussed. To write posts like this, feels like transcribing a conversation with my higher self and clarifies my thoughts.
.. words matter Julie .. terms & context too .. never having suffered from a Mood Disorder or Diabetes or Migraine I nevertheless Produced more Accredited CME - Continuing Medical Education Videos than anyone I know of in this regard
& will say what I believe - based only on the wealth of Medical Science Knowlege that was inherent in ‘the doing’.. the ‘making of those programs’ - whether seemingly endless Symposia, Interviews with KOP’s - Key Opinion Leaders, Stakeholders, Sufferers, Therapists..
My talent - following the Blueprint presented to me.. was to execute - illuminate - deliver the message as required, on Budget & On Schedule & in multiple languages. My ‘opinion was irrelevant.. But for what it’s worth, if anything.. here is my simple analogy..
Imagine telling someone with Type One Diabetes ‘pull your socks up.. and shake it off.. you can do it !’ Or a Severe Migraine Sufferer ‘Think positive.. and get out in the fresh air .. get some exercise & quit hiding in your bedroom in the dark..!’
Will just leave it there.. but it’s as crucial to me that my regard and concern for those suffering from a Mood Disorder is aligned with my regard & concern for a paraplegic who suffered a recreational injury or was born without any capability of hearing sounds of any kind..
There’s a book I often mention that’s quite delightful & need to revisit.. as it illuminates a story of a child born without the gift of ‘hearing’ - it’s Fiction, yes.. and a ‘First Novel’ too ! And as always.. no ‘spoilers’ & recommend folks - find it.. then read .. no preconceptions.. no nothings..
‘The Silence Of Bonaventure Arrow’ - Rita Leganski ..
am a gonna Post to Notes too.. cuz it’s my belief there’s great merit sharing this today..
Yes I relate what you are saying to advice given to me by a knowledgeable professor regarding my autistic son. He said to get the bits in his intervention program (EHCP in England) changed that instructed he “must give/sustain eye contact”. He told me that to demand this of an autistic child is tantamount to saying to someone in a wheelchair “get up and walk!”. So yes I see your point.
Good ole depression. An old friend that was never any good for me. I surprisingly have seen them of late given the shit show of a year it has been. Yet maudlin I do for the odd day or week. I like maudlin. I think it is a perfectly acceptable way to spend my time. Allowing the darker shades to take over my often perky or calm demeanour. Life is not one shade but many.
I think I’m probably bipolar tbh. I can be high as a kite then suicidal. But I just don’t like the idea of taking meds though. Would seem like masking to me.
I was diagnosed with bipolar. Turned out to be PMDD. Induced Menopause and now Hysterectomy has solved that issue. Having lived on bipolar meds for a decade or so they can be amazing when the side effects are not worse. They helped me through the never ending rollercoaster by putting me into a slow moving fog. I’m now figuring out how to cope without the rollercoaster or the fog - challenging but preferable.
Hope is all we have to keep going.When l ask God to help l ask for Please help me l can't cope with whats happening l feel other peoples pain too much l am learning sometimes the outcome is too much and l am powerless even in my own physical body.l am a sensitive human being.Julie keep safe ♥️🕊️.
Hope is not a heroine. Marvellous words. We desire to be rescued from circumstances. To be absolved, exonerated, free from pain and effort. But life isn’t like that. Life can amazing, beautiful - but it is never fair. It doesn’t hand out awards. It teaches you lessons. Thank you for sharing your thoughts.
As usual with stuff like this I write, this is advice to myself. Clearly i don’t have it sussed. To write posts like this, feels like transcribing a conversation with my higher self and clarifies my thoughts.
.. words matter Julie .. terms & context too .. never having suffered from a Mood Disorder or Diabetes or Migraine I nevertheless Produced more Accredited CME - Continuing Medical Education Videos than anyone I know of in this regard
& will say what I believe - based only on the wealth of Medical Science Knowlege that was inherent in ‘the doing’.. the ‘making of those programs’ - whether seemingly endless Symposia, Interviews with KOP’s - Key Opinion Leaders, Stakeholders, Sufferers, Therapists..
My talent - following the Blueprint presented to me.. was to execute - illuminate - deliver the message as required, on Budget & On Schedule & in multiple languages. My ‘opinion was irrelevant.. But for what it’s worth, if anything.. here is my simple analogy..
Imagine telling someone with Type One Diabetes ‘pull your socks up.. and shake it off.. you can do it !’ Or a Severe Migraine Sufferer ‘Think positive.. and get out in the fresh air .. get some exercise & quit hiding in your bedroom in the dark..!’
Will just leave it there.. but it’s as crucial to me that my regard and concern for those suffering from a Mood Disorder is aligned with my regard & concern for a paraplegic who suffered a recreational injury or was born without any capability of hearing sounds of any kind..
There’s a book I often mention that’s quite delightful & need to revisit.. as it illuminates a story of a child born without the gift of ‘hearing’ - it’s Fiction, yes.. and a ‘First Novel’ too ! And as always.. no ‘spoilers’ & recommend folks - find it.. then read .. no preconceptions.. no nothings..
‘The Silence Of Bonaventure Arrow’ - Rita Leganski ..
am a gonna Post to Notes too.. cuz it’s my belief there’s great merit sharing this today..
Yes I relate what you are saying to advice given to me by a knowledgeable professor regarding my autistic son. He said to get the bits in his intervention program (EHCP in England) changed that instructed he “must give/sustain eye contact”. He told me that to demand this of an autistic child is tantamount to saying to someone in a wheelchair “get up and walk!”. So yes I see your point.
Good ole depression. An old friend that was never any good for me. I surprisingly have seen them of late given the shit show of a year it has been. Yet maudlin I do for the odd day or week. I like maudlin. I think it is a perfectly acceptable way to spend my time. Allowing the darker shades to take over my often perky or calm demeanour. Life is not one shade but many.
Surprisingly haven’t …. Why wont Substack let me edit my notes?
Yes, that sounds like an excellent compromise.
I think I’m probably bipolar tbh. I can be high as a kite then suicidal. But I just don’t like the idea of taking meds though. Would seem like masking to me.
I was diagnosed with bipolar. Turned out to be PMDD. Induced Menopause and now Hysterectomy has solved that issue. Having lived on bipolar meds for a decade or so they can be amazing when the side effects are not worse. They helped me through the never ending rollercoaster by putting me into a slow moving fog. I’m now figuring out how to cope without the rollercoaster or the fog - challenging but preferable.
Best of luck to you. Hope it goes well :)
Hope is all we have to keep going.When l ask God to help l ask for Please help me l can't cope with whats happening l feel other peoples pain too much l am learning sometimes the outcome is too much and l am powerless even in my own physical body.l am a sensitive human being.Julie keep safe ♥️🕊️.
Love and strength to you too Mary x
Hope is not a heroine. Marvellous words. We desire to be rescued from circumstances. To be absolved, exonerated, free from pain and effort. But life isn’t like that. Life can amazing, beautiful - but it is never fair. It doesn’t hand out awards. It teaches you lessons. Thank you for sharing your thoughts.
Thank you. Yes, I think people expect too much of hope, they want the big turn around then get disappointed when things aren’t hunky dory.
Hope promises to soften, take the edge off and can deliver on that only.